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RESOURCES ON ALCOHOL-RELATED BIRTH DEFECTS

A number of important associations and organizations have been developed to educate, inform, and assist clinicians and the public about the consequences of prenatal alcohol exposure. The following list, though not exhaustive, is designed to give readers an idea of some of the resources that exist on the topic of alcohol-related birth defects.

The Arc of the United States
National Headquarters Office 1010 Wayne Avenue
Suite 650 Silver Spring, MD 20910
Phone: (301) 565-3842 Fax: (301) 565-5342
Info@ TheArc. http: / / www.thearc.org

The Arc is the national organization of and for people mental retardation and related developmental disabilities their families. Through education, research, and advocacy, The Arc works to improve the quality of life for children adults with mental retardation and related disabilities and their families and works to prevent both causes and the effects of mental retardation. The Arc' s Resource and Materials Guide and a comprehensive list FAS information and related links can be found at the web site listed above.

Consortium for Citizens with Disabilities
1730 K Street, N. W. , Suite Washington, DC 20006
Phone: ( 202) 785-Fax: ( 202) 467-4279
Info@c-c-d.
http: / /www.c-c-d.org/ index.

The Consortium for Citizens with Disabilities is a of national disability organizations working together advocate for national public policy that ensures the self-determination, independence, empowerment, and inclusion of children and adults with disabilities in aspects of society.

Family Empowerment Network: Supporting Families Affected by
FAS/ FAE (FEN)
Department of Professional Development and Applied Studies
University of Wisconsin-Madison 610 Langdon Street
Room 519 Madison, WI 53703-1195
Phone: ( 800) 462-5254 Fax: ( 608) 265-3352
fen@dcs.wisc.edu
http: / /www.dcs.wisc.edu/pda/hhi/fen

FEN is a national resource, referral, and support organization serving families affected by FAS and FAE and the providers who work with them. FEN is a project of the University of Wisconsin-Madison, Division of Continuing Studies, Department of Professional Development and Applied Studies. In addition to providing information and support, FEN also helps families by organizing family retreats, educational and training programs, a national conference, and by publishing a newsletter and providing other information and materials.

FAS World
FAS World 250 Scarborough Golf Club
Toronto, Ontario
M1J Phone: (416) 264-8000
Fax: (416) 264-8222
fasworldcanada@ home.

The mission of FAS World is to raise awareness about the of prenatal alcohol exposure. The organization aims to educate leaders, lawmakers, and other policymakers around world so that they can better make decisions and laws and policies that will ensure a healthier society by reducing the incidence of FAS and other alcohol-related disabilities and by providing needed intervention services to already affected.

FAS/ FAE Information Service
Canadian Centre on Substance Abuse
75 Albert Street, Suite 300
Ottawa, Canada
K1P Phone: ( 800) 559-4514, ( 613) 235-4048
Fax: ( 613) 235-8101
fas@ ccsa.
http: / /www.ccsa.ca/fasgen.

This information service, operated by the Canadian on Substance Abuse, provides links to support groups, prevention projects, resource centers, and experts on FAS/ FAE. It also provides information on FAS/ FAE to a variety of clients, including caregivers, educators, social workers, health and treatment professionals, members of the legal community, policymakers and planners, researchers, and the general public.

Fetal Alcohol and Drug Unit
Department of Psychiatry and Behavioral Sciences
 University of Washington School of Medicine
180 Nickerson Street, Suite 309
Seattle, WA 98109-9112
Phone: ( 206) 543-7155
Fax: ( 206) 685-2903
http: / /depts.washington.edu/

The Fetal Alcohol and Drug Unit conducts research to the prevention, intervention, and treatment of FAS FAE. The unit also disseminates information on fetal and drug effects and provides consultation for those by prenatal exposure to alcohol.

Fetal Alcohol Education Program
1975 Main Street
Concord, MA 01742
Phone: ( 978) 369-7713
 Fax: ( 978) 287-4993

The Fetal Alcohol Education Program (FAEP) is dedicated to research and education for the prevention, identification, and treatment of alcohol-related neurodevelopmental disorders. The program has a number of educational materials available for sale, including two teaching packages, one for professional education and one for parents and community groups. They also have developed a handbook for parents. In addition, FAEP staff offers brief consultations and referrals and maintains a list of families interested in participating in research studies.

Fetal Alcohol Syndrome Consultation, Education and Training Services, Inc
( FASCETS) : Providing Alternative Paradigms for Understanding Facets
of Behavior
P. O. Box 83175
Portland, OR 97283
Phone/ fax: ( 503) 621-1271
dmalbin@ fascets. org
http: / /www.fascets.

FASCETS is a private, nonprofit organization for and professionals that offers services designed to understanding, build on strengths, expand options for developing effective parenting and professional techniques, existing programs, and support the development of new programs. FASCETS offers community education through conferences, workshops, and professional seminars and professional development and consultation services.

Fetal Alcohol Syndrome Family Resource Institute ( FASFRI)
P. O. Box 2525
Lynnwood, WA 98036
Phone: ( 253) 531-2878
 vicfas@hotmail.com
http: / /www.fetalalcoholsyndrome.org

FASFRI is a nonprofit organization that provides a variety resources and services to families affected by FAS and ARBD. The Institute s services include referrals and support in help, parent support and advocacy groups, information parents and professionals, a newsletter and brochures, prevention programs, as well as training sessions and workshops.

Healthy Start Hotline
Phone: (800) 311-BABY (English)
Phone: (800) 504-7081 (Spanish)

By calling this hotline, women can reach either their own State s maternal and child health program or a local Healthy Start site, whichever is closer. The National Hispanic Prenatal Hotline provides answers to questions about prenatal issues in English and Spanish, mails out culturally appropriate information, and acts as a resource to providers who work with Hispanic families on prenatal care issues. Callers are told which prenatal care services are located nearest to where they live. Hotlines also put people in touch with other services; organizations; and agencies, including assistance programs, prenatal clinical care, home visiting services, translation services, parenting classes, and substance abuse treatment.

Iceberg
Fetal Alcohol Syndrome Information Services (FASIS)
 P. O. Box
Seattle, WA 98145-2597
Phone: (425) 827-1773
iceberg_ fas@ yahoo.com
Iceberg is an educational newsletter for people about FAS and FAE.

March of Dimes Birth Defects Foundation Resource Center
1275 Mamaroneck Avenue
White Plains, NY 10605
Phone: ( 888) 663-4637
Fax: ( 914) 997-4763
resourcecenter@modimes.org
http: / /www.modimes.org

The March of Dimes is a national research and foundation dedicated to the prevention of birth defects. Resource Center staff of trained professionals provides information and referral services to the public. Staff help people address personal and complex problems to numerous topics, including specific birth defects or health problems, pre-pregnancy, pregnancy, teen pregnancy, newborn care, drugs and environmental hazards pregnancy, support groups, and genetics.

MARCUS Developmental Institute
Division of Psychological
1605 Chantilly
Atlanta, GA 30324
Phone: (404) 727-9450
Fax: (404) 727-9598
ccoles@emory.edu
http: / /www.marcus.org/

The Marcus Institute provides diagnostic and evaluation and support programs to people with developmental disabilities, their families, and those who live and work with them.

Motherisk
The Hospital for Sick Children
555 University
Toronto, Ontario
Canada
M5G 1X8
Phone: (877) FAS-INFO ( [ 877 ] 327-4636)
http: / / www.motherisk.org

The Motherisk Program at The Hospital for Sick in Toronto is a clinical, research, and educational dedicated to antenatal drug, chemical, and disease risk counseling. It is affiliated with the University of Toronto. Motherisk provides information and guidance about safety or risk to the developing fetus or infant of exposure to drugs, chemicals, diseases, radiation, and environmental agents. Motherisk counseling and research women who are pregnant, planning to become pregnant, or breast feeding, rational treatment and the means for making well-informed choices to ensure a healthy start for children. The Alcohol and Substance Use Helpline information and counseling to pregnant and breast women, their families, and health care providers.

National Center on Birth Defects and Developmental
Disabilities ( NCBDDD)
Fetal Alcohol Syndrome Prevention Section
Centers for Disease Control and Prevention
4770 Buford Highway N. E. , MS F-49
Atlanta, GA 30341-3724
Phone: ( 770) 488-7370
Fax: ( 770) 488-7361
http: / /www.cdc.gov/ncbddd/

The NCBDDD at the Centers for Disease Control Prevention ( CDC) seeks to promote optimal fetal, infant, and child development; prevent birth defects and developmental disabilities; and enhance the quality of and prevent secondary conditions among children, adolescents, and adults who are living with a disability. The alcohol syndrome prevention office of the NCBDDD conducts FAS surveillance and prevention research.


National Clearinghouse for Alcohol and Drug Information ( NCADI)
P. O. Box 2345
Rockville, MD 20847-2345
Phone: (800) 729-6686
http: / /www.health.org.

NCADI is the information service of the Center Substance Abuse Prevention of the Substance Abuse Mental Health Services Administration in the U. S. Department of Health and Human Services. NCADI distributes information and materials concerning alcohol, tobacco, and other drug abuse prevention and treatment.

National Council on Alcoholism and Drug Dependence, Inc. ( NCADD)
20 Exchange Place
Suite 2902
New York, NY 10005
Phone: ( 800) NCA-CALL
national@ncadd.org.
http:/ /www.ncadd.org

NCADD provides education and information substance abuse and dependence. It advocates prevention, intervention, and treatment through offices in New and Washington, and includes a nationwide network of affiliates that provide information on local treatment resources.

National Information Center for Children and Youth with
Disabilities (NICHCY)
P. O. Box 1492
Washington, DC 20013-1492
Phone: (800) 695-0285, (202) 884-8200
Fax: (202) 884-8441
http:/ /www.nichcy.nichcy@aed.

NICHCY is a national information and referral center provides information on disabilities and disability-issues for families, educators, and other professionals. The center focuses on children and youth (birth to age 22). NICHCY s services include personal responses to questions; NICHCY publications, including fact sheets specific disabilities, state resource sheets, parent guides, bibliographies, and issue papers; referrals to other and sources of help; and information searches of NICHCY databases and library.

National Institute on Alcohol Abuse and Alcoholism ( NIAAA)
6000 Executive Boulevard, Suite 409
Bethesda, MD 20892-7003
Phone: ( 301) 443-3860
http:/ /www.niaaa.nih.gov

NIAAA supports and conducts biomedical and research on the causes, consequences, treatment, and prevention of alcoholism and alcohol-related problems and disseminates information on all aspects of alcoholism. NIAAA hosts the Interagency Coordinating Committee on Alcohol Syndrome (ICCFAS) . Members of the include representatives from multiple national agencies organizations. The Committee s objectives are to information and to coordinate Federal strategies and pro-grams in an effort to more effectively address alcohol-birth defects on a national level.

National Organization on Fetal Alcohol Syndrome ( NOFAS)
216 G Street N. E.
Washington, DC 20002
Phone: ( 202) 785-4585
Fax: ( 202) 466-6456
information@nofas.org
http:/ /www.nofas.org

NOFAS is a nonprofit organization dedicated to eliminating birth defects caused by alcohol consumption during pregnancy and improving the quality of life for those individuals and families affected. NOFAS piloted many of its programs in Native American communities and takes a multicultural approach to prevention and healing. NOFAS includes the following program areas: national and community-based public awareness campaigns; a curriculum for medical and allied health students; training workshops and seminars for professional and lay audiences; youth outreach and peer education initiatives; and the NOFAS information, resource and referral clearinghouse.

National Resource Center For Special Needs Adoptions
16250 Northland Drive, Suite 120
Southfield, MI 48075
Phone: ( 248) 443-7080
Fax: ( 248) 443-7099
sfc@Spaulding.org
http: / / www.spaulding.org

This organization provides training, consultation, and informational materials on special-needs adoptions for professionals, organizations, and parents.

Native American Women s Health Education Resource Center
P. O. Box 572
Lake Andes, SD 57356
Phone: (605) 487-7072
nativewoman@jgc.apc.org
http:/ /www.nativeshop.org/nawherc.html

The Resource Center was the first such center located on reservation in the United States. It operates a fetal syndrome awareness program, along with many other programs to help people locally, nationally, and internationally. Other programs focus on domestic violence, AIDS prevention, and youth services.

Substance Abuse and Mental Health Services Administration (SAMHSA)
5600 Fishers Lane
Rockville, MD 20857
Phone: (301) 443-8956
Fax: (301) 443-9050
info@samhsa.gov
http:/ /www.samhsa.gov

SAMHSA is the Federal agency charged with improving the quality and availability of prevention, treatment, and rehabilitative services in order to reduce illness, death, disability, and cost to society resulting from substance abuse and mental illnesses.

Other FAS Internet Links:

FAS/ FAE USA National Directory
 
http:/ /www.mofas.org/fasdirect

Fetal Alcohol Syndrome Community Resource Center
http:/ /www.come-over.to/ FASCRC

Arium: a nonprofit organization for the prevention of alcohol syndrome.
http:/ /arium.org

FASlink: an on-line support/ information source.
http:/ /www.acbr.com/fas/faslink.

Fasstar.com: Fetal Alcohol Syndrome Support, Training Advocacy and Resources.